Unfortunately, I don’t have good news today. This post is mostly boring, dry data.
The past week was hard, and today is worse.
Vitals
- Vitals (BP, BPM, Blood O2, EKG, temp) are within range.
- Weight: 119 pounds (down from 122 weeks ago).
- Sleep: Sleep is impossible aside from broken cat naps. Two broken hours of sleep in the past 24 hours. Average is 3.5 hours. I postponed my doctor’s appointment. Too dangerous to drive 1.5 hours sleepy.
Pain
- 7 or 8 today (on a 0-10 scale). Pain can’t be ignored.
- Pain meds I can’t take: NSAIDs (chronic gastritis/ulcers). Opioids (causes severe dyspnea). Cannabis (doesn’t work).
Symptoms
Current and not comprehensive.
- Acute Symptoms (from progressive jaw osteomyelitis). Possibly life threatening. Ordered from worst to least.
- Sepsis-like upper body inflammation. A smoldering, electric furnace in my heart with waves of shocks and burns radiating through my extremities. This jolts me awake every time I fall asleep. It’s brutal.
- Localized, throbbing soreness (like a cavity, but not). Itching and sharp twinges along left mandible, ramus, and ear. The affected area steadily grows in size.
- Sensitivity and taste of batteries/blood along the lower left gum line margins (at site of bone infection).
- New symptoms:
- Mild intermittent chest pains. Monitor for endocarditis risk.
- Sudden, sharp pinpricks on toes and fingers. Infrequent. Monitor.
- Mild heat on entire left face and left ear (osteomyelitis sites).
- Joint and bone pain on upper arms, shoulders, and toes.
- Slight dyspnea (labored breathing). Monitor.
- Sleep deprivation pain. Very hard to describe. It’s a cobweb-y tightness in all organs that only tensing of all muscles can temporarily relieve. A very unique pain that can reach nightmarish levels.
- Left ear tinnitus (by osteomyelitis site). Extremely loud, like a field of crickets and cicadas, but not painful.
- Chronic symptoms (from all other diseases). Not life threatening. However, the inflammation worsens the osteomyelitis.
- Skin burning on upper body and head (mycotoxins? gadolinium?). Can mitigate with frequent showers, toxin avoidance, etc.
- Pressurized headache. Feels like air is pumped into my “puffy” skull. (Mycotoxin/toxin reactivity). Semi-controllable.
- Poor memory and recall. 80% of the time I can’t recall why I picked up my phone, walked into a room, opened the fridge, opened my laptop, etc. Doing anything takes much longer than usual.
My Limitations
- Extreme toxin avoidance protocols (ETAP) forces me to live alone in Dover far away from friend/family. After extensive searches, Dover was the only apartment and town that felt tolerable to me.
- No furniture due to ETAP except for essentials (medical equipment, disposable/portable gear). I sleep on the floor.
- When sick like today, I hide in my bedroom 23/7. All other rooms feel toxic to me now. Outside doesn’t feel good either.
- Shower 2 or 3 times a day (“decontamination” ETAP).
- Clothes sadly are semi-disposable. Pains me to be un-environmental. I wash and re-wear them until they become too toxic. Dependent on sales/clearance items at Walmart. I’ve stopped caring about style.
- ETAP for self-decontamination is to shower with a fresh towel and a fresh change of clothes. I bring these as a kit with me in a tote wherever I go. I only go into a building if (1) I’ve tested it as safe, (2) I can safely shower with my kit before leaving, or (3) there’s an emergency/exception.
- Hugs sadly are generally disallowed.
- Exercise intolerant (causes me to crash), but I can take walks.
- Absolutely no sugar, gluten, caffeine, alcohol, or dairy.
Reply