Built version 1 of my fresh air intake (to reduce mosquitoes and for heating in winter). It worked out okay last night (though it rained). Going to Home Depot to get velcro and replace my insulation board floor that’s ripping apart.
Went to Hampton Bays to pick up a very small irreplaceable item I need from the contaminated truck. Being super careful to avoid contaminating my new truck. I’ve been re-washing the items in bentonite clay for weeks now. Also here to sell an item but the buyer is a no show. Heading to Yaphank Walmart for a few weeks of provisions (the one in Garden City is too toxic to me).
So many micro projects!
I’ve been trying to upload a completed 1-minute video since yesterday, and having so many tech issues.
This is my first video since I’ve been at rock bottom for almost a month now. Till now, my first videos were shot on my phone and uploaded as is with no edits. But to make edits, I need to work on my laptop. But once I finally got the video onto my MacBook to edit (thanks to a Whole Foods wifi), I can’t upload onto the social media platforms properly because I need to do it on the phone to get auto-transcriptions, which are important.
The Apple ecosystem has lots of little issues that prevents easy transfer of files. I can’t easily transfer because I don’t have fast wifi and only unreliable cellular network. A big pain point is that only iPhones will sync files/photos to iCloud on cellular networks. Any other device or Macbook won’t sync to iCloud if it is on Hotspot. It’s disabled with no way to get around it. This makes no sense to me—especially when Android devices on hotspot have no such limitations. It’s such a value-destructive shortcoming in a world where cellular data is so cheap and available now. So I have to figure out a way to do it hardwired…
But then the iPhone won’t read or register hard drives 99% of the time! So I can’t transfer files in or out. The only way I’ve done it so far is by connecting to fast public wifi—which is challenging because many throttle.
I’ve been buying and trying different dongles, adapters, devices, solutions, and nothing quite works because, well, the iOS devices have such intense firewalls to prevent hardwired transfer of data. Airdrop for large files also doesn’t work at all without home wifi. So much technology in these devices, and yet so much wasted opportunity resulting in wasted time. Apple’s ecosystem is both a walled garden and jail.
I think the only real durable solution is StarLink or something like that, or use Android devices too , but no funds for that. I’ll have to just keep trying. Super frustrating. And the only solution for now is to drive back to that one Whole Foods, sync my iCloud on all my devices, and then upload from my iPhone. Multiple docking trips to Whole Foods per day will just have to be part of my daily workflow for now going forward.
Sleep issues continue. 4.5 hours last night. The most in 5 days. My amazing two days of feeling normal (no pain) is now 12 days ago away in my rear view mirror, and getting farther away. I look forward to experiencing it again, maybe even this year.
Part of the reason why sleep is difficult is because my symptoms are back. I’m not at rock bottom, but my skin and head have been burning nonstop for days now. It could be the air. Hampton Bays feels pretty bad now. Garden City didn’t feel good either. It could also be something endogenous. Impossible to know without deeper analysis, which I don’t have time for. Need to make videos…and to figure out how to upload them!
On a bright note, I saw my daughter briefly again yesterday. Saw her three times over the past 11 days (a record I think).
Wednesday, August 16
When it rains, it pours (mosquitoes). Only 1.5 hours broken sleep last night due to rain and mosquitos—and my stronger 24/7 reactivity to seemingly everything. The clothes I wash yesterday also went bad somehow so I need to rewash a large load at the gym shower later today. This morning I spent 2 hours completing my air intake version 2 and also applying foam sealer around the large gaps around my tailgate. But I have much to do so no dilly dallying…
I need to drive 1.5 hours to Dobbs Ferry to pick up some packages from my sister’s place, remove and store away some small items that I may be reacting to.
I was finally able to upload the video last night docked to a good public wifi. But this isn’t a sustainable process. Need to find a good video editor on my phone.
I must create and upload a video today. Must.
Sunday, August 19, 2022
Last night had a rock-bottom night. An hour or two total of just catnaps due to the pain. But unlike previous rock bottom, this time I was able to make a video.
Spent the day trying to decontaminate things, remove items from my truck, shower several times and stayed away from the truck (to isolate the cause of my extreme reactivity). Nothing seemed to work.
Last night I did pick up two packages (one from China with my two medications currently undergoing clinical trials and not available in the US). I also picked up a sample 20-pack of my iron-on TragicHappy “strong” T-shirt DTF transfers. The China package felt okay to me but the transfers felt very toxic to me. However, fearing a loss of $25 (this fear always the bane of my mistakes!), I made the mistake of bringing it into my truck to try to decontaminate and salvage it later. Well, it seemed to have contaminated my truck badly. This evening I finally threw it away. Then I tried to decontaminate the truck and belongings once again, but that failed. Everything just felt incredibly bad. My reactivity is at 100%, jaw infection is completely reactivated and feels like it’s hemorrhaging toxins everywhere.
Before this, I had been steadily getting worse the past few days. The air everywhere felt bad and inescapable. Bayside wasn’t better. But today everything ramped up to bad levels.
I was lucky to have nearby friends Bryan & Julie let me stash my questionable items (including my medication!) in his garage while I tried escaping toward Hamptons area to see if that would help. I’m just trying everything and anything I can afford.
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